Carmen Breathes – Her Story
This is my Journey with CF
Cystic Fibrosis is a genetic disease that affects the lungs and the digestive system. Your body produces sticky mucus, clogging up all airways and tracts leading to chronic infections in the lungs and malnourishment of the body. The life expectancy of CF individuals are currently roaming around 40 years of age. My goal is to prove them wrong and live a life filled with adventures and happiness. To fulfill my dream in starting a family and becoming a grandma, I need some help.
Afflovest has improved CF lives incredibly by assisting us in our daily treatment regimes by shaking us left, right, up and down to get all the sticky mucus out of our lungs and minimize lung damage and exacerbations. It has been proven that an Afflovest can improve lung function by an average of 16% (https://www.afflovest.com/…/uploa…/2016/05/Tackett-Paper.pdf). Currently only a handful of people in South Africa own a vest – and I’m not one of them.
This is my journey in raising enough money for an Afflovest by collaborating with different individuals to make my wish come true. Take part in my campaign -CARMENBREATHES to make a difference.
The whole purpose behind launching this documentary was to show people what CF is like on a day-to-day basis. It honestly does not fathom the emotional side, but perhaps the physical aspects. I wanted to create awareness for Cystic Fibrosis in sharing my experience with it as a 21 year old. It was mostly to also encourage others with CF to live their lives to the fullest and to not let CF take over their love for life and pleasures they experience, but to incorporate it in a CF-friendly manner.
I was diagnosed with Cystic Fibrosis at the age of 13 months. Since then my life has been filled with great joy and great struggle, but CF has not determined my life, I just chose to live my life and make CF apart of it. Living every day as if it was your last definitely got a new meaning in my life. I’ve learnt to appreciate those ‘live a little’ moments more than the ordinary person I guess. It’s different seeing things as a ‘once in a lifetime experience’ than just another thing you will experience again someday perhaps. No day is just another day for me, everyday is TODAY, and so it should be for everyone. Follow my Journey as I raise funds for an Afflovest and take part in creating awareness for Cystic Fibrosis.
I am currently in my 20’s which means in CF-terms that she has reached more than half of my lifespan already.
The Cause of CF:
Mucus is a substance made by tissues that line some organs and body cavities, such as the lungs and nose. Normally, mucus is a slippery, watery substance. It keeps the linings of certain organs moist and prevents them from drying out or getting infected. If you have CF, your mucus becomes thick and sticky. It builds up in your lungs and blocks your airways. (Airways are tubes that carry air in and out of your lungs.)The buildup of mucus makes it easy for bacteria to grow. This leads to repeated, serious lung infections. Over time, these infections can severely damage your lungs. The thick, sticky mucus also can block tubes, or ducts, in your pancreas (an organ in your abdomen).
Healthcare and Insurance in South Africa has very poor coverage when it comes to medical devices, medicine and even proper care- therefore I am raising funds to help my journey in becoming an adult who can enjoy things like marriage, children and possibly old-age.
I created an awareness page called: CARMENBREATHES that shares my experience with CF and how I still tries to live a normal life.
By Carmen Crous
We here at Layers Skincare have decided to support Carmen’s journey with CF and we ask that you do too. 🌷go follow her journey on Facebook or Instagram @carmenbreathes